‘I’ll go anywhere, I just need an outlet’: life with cystic fibrosis – BBC News Brasil

  • Simone Machado
  • From São José do Rio Preto (SP) to BBC News Brasil

Credit, Personal archive

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Jade Monte-Mor tries to keep the disease from limiting her life

Digital influencer Jade Monte-Mor, 26, who was diagnosed with cystic fibrosis at just six months to live, says she tries to make the disease not a limiting factor in her life. For the past three years she has been on oxygen 24 hours a day and insists on travelling, partying and living as close to what she considers “normal” as possible.

The influencer reports that he discovered the disease after a genetic test. Before receiving her diagnosis, she lost her older sister, Jessica, then just six years old, to cystic fibrosis.

Jade, who is from Taquara (RJ), says that, until the age of three, Jessica was a child who had no health problems. But symptoms began to appear that the doctors could not explain, such as shortness of breath. After several tests, the girl was diagnosed with cystic fibrosis. It was her sister’s death that caused doctors to run several tests and discover that Jade also had her condition.

“In my sister’s time, cystic fibrosis was not known at all, unfortunately it was treated like tuberculosis, with strong medicines that weren’t the right ones, a lot of time was wasted. We discovered the disease too late,” she says.

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